Happy New Year!

Hey everyone,

Happy New Year! We feel so blessed to be able to celebrate this year at home with Judah, and are so grateful that he has remained healthy! We thought that with a new year starting, it would be a great time to update you all on what’s been going on with Judah.

He has been doing great! Aside from the few weeks following his heart surgery, Judah has been off the vent for 12-14 hours during the day since late summer. When he goes to bed, we reconnect his trach to the vent for the night. At a follow up cardiology appointment in December, we expressed our desire to be as aggressive as the doctors feel comfortable to get the trach out. His doctors said that at the first of the new year, they would consider him officially recovered from his surgery, and would feel comfortable with us beginning the process of removing the trach! So, next week, we’ll be taking him to his pulmonologist (lung doctor) to take the first step in taking the trach out. That first step is decreasing his vent settings so that he will be doing more work at night. If all goes well, the trach will come out and we’ll come home without the trach or vent! We anticipate this to happen sometime in early March.

It has been an unbelievable year for us. Like all of you, we’ve had our ups and downs and are looking to 2014 to be an awesome and exciting year. God has sustained us in the darkest of hours and it’s our prayer that all of you would find the same goodness and love that we found when we looked to Him. God is good.

Thank you all so much for your prayers and support over all this time. It really is amazing to us! Please keep Judah in your prayers as we begin “go after” getting the trach out. We believe he’s ready and can’t wait to start moving forward.

We’ll leave you with a few pictures from the last year.

Much love,
Nick & Liz

First few hours. 11/11/12

First few hours. 11/11/12

36 hours after birth. Shortly after diagnosis.

36 hours after birth. Shortly after diagnosis.

Judah looking unimpressed with his new friend. 12/3/12

Judah looking unimpressed with his new friend. 12/3/12

Tape free face! A few days after his trach was put in. 1/19/13

Tape free face! A few days after his trach was put in. 1/19/13

Tongue out! 2/19/13

Tongue out! 2/19/13

The hood picture. 3/13/12

The hoodie picture. 3/13/12

Home! 4/17/13

Home! 4/17/13

Judah and his cousin Levi. 5/5/13

Judah and his cousin Levi. 5/5/13

Judah in his swing! 8/28/13

Judah in his swing! 8/21/13

Happy baby! 8/28/13

Happy baby! 8/28/13

Overnight prep for heart surgery. 9/23/13

Overnight prep for heart surgery. 9/23/13

Getting ready for the big day! 10/29/13

Getting ready for the big day! 10/28/13

Recovering. 11/7/13

Recovering. 11/7/13

Birthday presents! 11/11/13

Birthday presents! 11/11/13

Judah playing in the snow!  12/18/13

Judah playing in the snow! 12/18/13