Hey friends, we’re home and doing great! Full blog post tomorrow.

Much love!

Ready To Go Home!


Hey everyone,

Judah has continued to do very well. So much so that (as long as everything stays the same overnight) they will discharge Judah tomorrow!

Overall, he’s been doing incredibly well. His lungs are in great shape and his body has adjusted to being off Milrinone. They did another echo today and his heart looks about the same as it did last week. Although it’s better than when he first came in, it’s not back to his normal. It’s possible that it could still go back but it’s also possible that it won’t. It’s hard to say at this point what will happen. Even if it doesn’t get better, he could go for years in the condition he’s in. Our cardiologist has said, “You don’t treat the echo, you treat the patient.” So, as long as he’s in good shape and happy, nothing really needs to be done. At this point, having the LTR surgery and getting the trach out is still on the table. We’re scheduled for mid-May but that may need to be pushed out to sometime this summer.

He’s been doing great off the vent during the day (about 12-14 hours) and only goes back on at night. This is how we’ll go home. Thankfully, it’s only for a few weeks while he continues to recover. Since he’s been sleeping so¬†well during the night, Liz and I will be able to handle it without having overnight nurses again.

We are so happy to be going home! We give God glory for Judah’s quick and smooth recovery! Thank you all so much for all your thoughts and prayers. It really means so much to us!

Much love,
Nick & Liz