Discharged and Home

Hey everyone, we were discharged and arrived home earlier today. Judah is doing well and getting back to himself! We’re all exhausted but doing well.

Thanks for praying!

Nick & Liz

Laughing and Playing

Hey friends,

Things have been going very well!

There hasn’t been a lot to report lately because things are going smoothly and not much has been happening.

Judah has been growing well. Today, he had a doctors appointment with our pediatrician and got his 4 month vaccinations (yeah, he’s a little behind), but he took ’em like a champ! When we left the hospital he was 12.8lbs and we’ve had some trouble getting his weight up. Two weeks ago we came up with a solid plan with our nutritionist to help Judah gain weight. At that time he was 13.3lbs and today he’s up to 14lbs! We are planning on increasing his amount of calories and the volume this week. Since he was born, Judah has always had a difficult time adjusting to food increases. Please pray that he will be able to adjust quickly and continue growing.

Judah is progressing well in the areas that “normal” babies do. His head control, hand-eye coordination, and curiosity are all progressing really well. He’s beginning to sit up for a few seconds and even play with his toys. Over the weekend his aunt Mary got him laughing and we caught it on video (below). Few things in life bring as much joy as seeing him so happy. We’re truly grateful for our Judah. He’s the best kid ever!

Please continue to believe with us for healing in Judah’s body. For his heart, his lungs, his diaphragm and all the little things as well.

Thank you all so much for following our story and praying for our Judah!

Much love,
Nick & Liz

Dedication Day!

Hey everyone!

We’ve had a good few weeks! Judah will be six months old this coming Saturday. We can’t believe it’s been that long already. God has been so good to us since he was born. We are so grateful to have him in our lives!

This morning we had Judah dedicated at our church. For those of you that aren’t familiar with this, I’ll give a brief explanation. Liz and I brought Judah to the front of the church, along with both sets of our parents, and our pastor asked us a few questions – basically if we would commit to raising Judah according to Biblical standards, to which we said, “yes”. Then the church leaders came around us and we all prayed for Judah. We were really thankful to have almost 40 people from our family and friends join us for the service and lunch afterwards. It was a long but very good day.

This week we took him to see his cardiologist at Strong. Judah is doing well but they’d like to see him grow a bit more. He’s currently about 13 lbs.  They’d like him to catch up to the average weight for his age which would be about 16 lbs. We’re concentrating his formula to give him more calories so hopefully that will help him catch up.

At this point we think his second surgery (the Glenn) will be sometime in July. We really won’t know until we get closer to that time. What they are looking for is mainly weight and height gain. He currently has a conduit in his heart that he’ll outgrow. As we get closer to the time, his oxygen saturation numbers will begin to decline and he will appear “bluer”. Right now, we’re just happy to have him home and getting to spend so much time with him. It’s such a joy to see him grow and change. We love being Judah’s parents!

Please be praying for Judah’s continued good health. It’s very important that he stays healthy for his next surgery. Also, please be praying that he’ll be able to gain weight and get up to where they would like him to be. As always, we ask you to join us in believing for a miracle in Judah’s body. We believe our God is able and we will continue to pray and believe for Judah.

Thank you all so much for your continued prayers and support over the past six months. We are so blessed by all of you!

Much love,
Nick & Liz

Here are a few photos from today:

Judah’s Dedication
Judah and his cousin Levi
Bath Time!

We’re Home!

We made it home today! Thanks for praying for us!

Judah seems to be feeling better and the new soy based formula seemed to clear up any issues.

Full post tomorrow once we get some rest.

God bless!

Much love,
Nick & Liz

TUESDAY! TUESDAY! TUESDAY! (And Today)

Judah’s first nap in his own crib

Hey everyone,

It’s official, we are headed home on Tuesday! Our nursing is lined up and Judah is ready! Today, Judah got his first visit to our new home. We were able to take him home for the day while we got some last minute things set up for him. He did well the whole day which helps us feel better about taking him home for good.

We are really excited about starting a new chapter in this story and are so grateful for God’s goodness to us and to Judah these past four and a half months. He has brought us peace in the most fearsome times and hope in the darkest of hours. Without Him, we truly would not be standing today. He is good and He is real.

Thank you for joining your hearts with ours since the very beginning. Your thoughts and prayers mean the world to us!

Much love,
Nick & Liz

Doing Well. Going Home Soon!

Hey everyone!

Judah has been doing really well! We just got through his first two teeth coming through! He wasn’t very happy about it, but he doesn’t really have a lot of say in the matter. :)

We mentioned that we were aiming to go home on April 1st, and that looks like it might actually happen! If not then, definitely the following week. We’re happy to say that we finally have all our nursing in place! All that’s left is some training for the nurses and that should happen this week. It’s exciting and scary at the same time. We will have been here for almost 5 months. It’s crazy to think about. When we left for the hospital with Liz in labor, we expected to be home in a few days. And here we are so many months later. We’re so glad that Judah has been doing so well and we can’t wait to get him home with us!

We would ask that you pray for Judah’s belly. He has always had a hard time keeping food down. Most of the time it’s because of mucus. When he coughs, he sometimes ends up gagging so hard that he throws up his formula. Please pray that his body allows him to keep his food down so he can grow!

Thank you all so much!

Much love,
Nick & Liz

Here is a photo of me and Judah without him being connected to the ventilator. We’ve found that he can do just fine for a few minutes at a time. So grateful for that!

Discharge Date

Hey everyone,

Judah has been doing very well. We have our normal ups and downs, especially since he is teething, but overall everything is good. The best guess as to what was happening with his respiratory issues last week was that he was getting a virus but got over it fairly quickly. We haven’t had any significant breathing issues in over a week now. Thank God for that!

It’s been a very busy few weeks for us. We’ve been going home on the weekends to pack up our things, paint the new house, and, this past weekend, get everything moved into the new place. We came back to Rochester on Sunday to be with Judah. Monday evening we headed back to Warsaw and spend the day on Tuesday cleaning out our old apartment and fixing up the new place. Today we started our “24-hour stay” – which is a requirement before you can go home with a patient that has as many needs as Judah does. They suggested we stay longer than that to get a “true feel” for what it will be like with Judah at home. Basically, this just means that the nurses stay out of the room (except in the case of an emergency) and we take care of all of Judah’s needs. For us, the 24-hour stay is really more of a formality. This won’t be much different for us, as we do everything while we’re here during the day. The only difference is sleeping at the hospital and waking up every three hours to start his feeds. Judah has been sleeping through the night for quite some time now. So Liz and I will be with Judah until Friday and then we’ll head back to Warsaw for the weekend to unpack.

Nursing is coming along very well. We just need to fill one more overnight slot and we’ll be  able to bring Judah home! Once the nurses positions and schedules are confirmed, it will still take some time to get all of the paper work in order and for the nurses to go through some orientation. Right now, our expected discharge date is April 1st.

It’s been a long four months but God has been so faithful to us. Without question, I don’t know how we would have gotten through this time without Him. The peace He gives in the midst of the storm truly goes beyond our understanding. In times where you feel helpless, what can you do but trust God?

We’re grateful for Him and we’re grateful for you. Thanks for following our story and praying for our Judah!

Much love,
Nick & Liz

Night Out On The Town!

Hey everyone,

We had a great day! It’s so nice to be able to say that so often!

Today, we were able to take Judah out for dinner! We were very excited, but he didn’t seem too impressed. :) The whole thing was pretty uneventful (which is how we like things). There was a lot to take with us but thankfully the stroller we got before he was born was able to fit everything in it nicely.

Things are progressing well. As we stated in Saturday’s post, we are moving into a house in the first week of March so we aren’t planning on going home until after we move. Also, we are expecting to stay another 2-3 weeks (from now) for the nursing situation to get completely solidified.

Thanks for all your prayers, thoughts, comments and messages! It’s so great to know so many of you care about us and think of us as often as you do.

Please continue to pray for Judah! We are still believing God for a miracle in Judah’s heart and lungs. We would love it if you believed with us!

Much love,
Nick & Liz

Here are a few photos from today.

We’re moving!

Hey friends!

We’ve had a great week and Judah is continuing to do very well! One of the big focuses over the past week has been about housing. As I’ve mentioned in an earlier post, our current apartment is a great size for Liz and I and even Judah but not so accommodating for a nurse and all of Judah’s “gear”. In addition, after talking with the company that is providing all of his home care equipment, it seems our apartment building doesn’t meet the electrical needs that Judah’s vent requires. Basically, the building isn’t electrically grounded. On Tuesday, I sent an email out to everyone in our church, letting them know we were looking for a new place to live. By Wednesday evening someone let us know they were wanting to move and their place would become available by the end of this month! This morning Liz and I went to see the house and then met with the landlord. Everything went great and we spent the rest of the day packing! So, as if we needed something else to keep us busy, we will be moving before we bring Judah home.

We are so grateful and amazed at how quickly God provided a new house for us to bring Judah home to. It’s quite a bit larger so it will be able to comfortably accommodate us and a nurse and the equipment. It will take some work, but we feel like this is the right thing to do for our family. Since we came home to get those things taken care of today and we are attending church in Warsaw tomorrow, tonight will be the first time we’ve slept in our apartment since November 9th! It’s nice to be home but it’s hard to be away from Judah. Thankfully, we know the nurses are taking good care of Judah (who we hear is the “favorite” in the unit!). Liz will head back tomorrow and I will stay until Monday to tie up some loose ends and then go back to Rochester.

Thank you all for your prayers! God is truly amazing!

Much love,
Nick & Liz

Happy Three Months!

Hey everyone,

Judah is 3 months old today! Well, actually, it was 3 months yesterday. I starting writing this blog post then and the evening just got away from me. That happens pretty often around here. :) It’s been a crazy journey so far but we’re incredibly happy to have him in our lives! God has truly given us the grace to walk through this with joy in our hearts.

No real updates to report, just this video of Judah’s first “walk” around the floor. Enjoy!

Much love,
Nick & Liz