Early tomorrow morning will be heading to Strong Memorial Hospital for Judah’s second open heart surgery called the “Glenn“. This is the second of three heart surgeries he needs by the age of five. We will bring him in at 6:30AM and by 7:30AM they will have begun the procedure. They expect it to take up to 5 hours with the heart surgery itself only taking 30 minutes.
At this point the biggest concern is infection. As most of you know, he has a trach and has been on a vent since he was born. The issue is that the hole for the trach is only an inch above where his chest incision will be. It’s very important that drainage from one area doesn’t get to the other. There is also some concern with some extra veins that have grown, but we are hoping that will correct itself after surgery. (Read this post for more info about that.) That’s all on top of recovering from major heart surgery. Because of all these reasons, they expect our stay to be about three weeks. This is about a week longer than most kids with this surgery.
Even though Judah is now off the vent for 12-14 hours a day, they have no intention of removing the trach while we’re in the hospital. They would like to see him fully recover with the help of the vent and then discuss removing the trach. Full recovery is about 4-6 weeks.
This last year has been crazy for us. One year ago we were expecting a completely health baby boy. The biggest thing that has gotten us through is our faith in God. His grace and peace has touched us in the realest way imaginable. If you’re willing, we ask you to keep us and Judah in your prayers tomorrow and in the coming days and weeks.
Here are a few requests:
- We believe God is still able to do miracles. We will never stop hoping and believing for a miracle in Judah’s body.
- A complete success in surgery.
- A quick recovery without complications or infections.
- Grace, peace and strength for Liz and I.
Thank you all for praying, believing and standing with us this past year! We are so grateful for you all!
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Below are more details on what HLHS is and what they will be doing tomorrow.
Nick & Liz
What is HLHS?
Judah’s first surgery last November called the “Norwood”
What they will do tomorrow (the “Glenn”)