Tonight we arrived back at the Ronald McDonald House near Strong Hospital in Rochester, NY. Early tomorrow morning Judah will be going in for some testing. He will be having heart catheterization and a bronchoscopy done back to back. We will take him in at 6:30am and they’ll start around 7. He will be put under anesthesia and they will start with the bronchoscopy. That should take around 30-45 minutes. They will be looking to see how much his airways have grown since early January. (For more details on the first bronchoscopy, read this post.) So as soon as that’s done, the pulmonologist will come out and give us results. The cardiac team will then immediately start with the heart catheterization. They will be checking to see how his heart is doing and how soon he needs the next surgery (the Glenn). That will take a bit longer, about 60-90 minutes. As soon as that’s done we will talk with our cardiologist about what he saw and what he thinks about the next surgery. As we’re talking with the doctor, Judah will head to the recovery room where we’ll join him soon after. Early in the afternoon we will take Judah up to the PICU (where we were for 5 months earlier this year) and Judah will stay overnight just to recover fully before we take him home on Wednesday. (Hint hint, nurses who may not be working tomorrow but want to stop by for a visit, we’d love to see you.)
This is a scheduled procedure so it’s nothing urgent. Judah has been doing very well at home. He’s off the vent for 2 hours and 20 minutes, twice a day. He shows no signs of getting tired at the end of each “sprint” and his numbers are always good.
Liz and I are doing well. Even though we’re here for something very minor, being back in this environment stirs up some memories and emotions. I’m sure tomorrow will bring on even more. “Surgery Day” (as we’ve come to call days like this) is never easy. Watching your baby be rolled away under someone else’s care is something that’s difficult to deal with. We have always trusted God and we will continue to do so.
1. That there would be no complications or problems with anything tomorrow.
2. That Judah’s airways would be at 100% and we will begin looking at taking the trach out.
3. That the doctors will find that a miracle has taken place in Judah’s heart. We know that sounds crazy to some of you reading this, but we really believe that our God can do miracles.
4. That his recovery would be quick and without any issues.
5. That Liz and I would feel God’s peace while he’s gone tomorrow.
Thank you all so much for your constant prayer and support! This past year has been so crazy for us but we are so thankful for God’s grace and your support.
I’ll be updating as I’m able tomorrow. You can subscribe to the blog if you’d like to receive updates in your email.
Nick & Liz