How To Get Home

Hey friends,

Judah has been doing good since his fever broke two nights ago. Nothing has come back positive regarding any infection, so that’s good news! He had a big day today, it was the first time he’s been out of his bed since they put the trach in on Monday. He was in his swing for a little while and Liz got to hold him for part of the day! He’s seems to be getting back to himself and we’re really happy about that.

Yesterday we had a big meeting with our social worker, respiratory therapist, cardiac nurse practitioner, a representative from the pulmonology department, and the discharge coordinator. We’ve also been meeting with the Clinical Nurse Specialist – all to discuss what it will take to get home. The good news is that Judah will be ready to go home by the middle of next week, it will be everything else that keeps us all here longer.

As of right now, the goal is for us to be home by March. We’re told it will take that long for things to get through the State, line up at home nurses and for us to be fully trained in how to care for all of Judah’s needs — mainly learning all the ins and outs of the ventilator he will be hooked up to. This will include a 24-hour period where we will take care of 100% of his needs (the nurses will only help if there’s an emergency) and also a day trip out of the hospital. As we said before, the thing that will most likely keep us here the longest is finding at-home nurses.

Please pray that we are able to find the nurses we need and are able to pick up the training easily and quickly.

Thank you all so much for following our story and praying for our Judah. It’s been a long 10 weeks but we’re really happy to be talking about going home!

Much love,
Nick & Liz