It’s week 11 and Judah’s good days are becoming more consistent than they’ve ever been! Today we removed his heart leads that he’s had on since he was 2 days old. His rhythms have good for almost this entire time. It’s funny how we came in for heart surgery but have barely talked about his heart since those first few weeks. It’s been a crazy ride.
Liz and I are doing just about everything for Judah while we’re at the hospital. Drawing up meds, giving them through the G-tube, trach care, changing the trach collar, G-tube care, bath time, clothes changes, suctioning. We’re even turning off alarms when they sound because we know what they mean and whether or not it’s something to worry about (which it almost never is). We’ve also been trying to get him used to more “normal” things like laying on the floor and in his bobby pillow. It’s a lot of work but it feels great to be able to take care of him.
Please continue to pray for the right nurses to be available for Judah’s home care needs. We are also praying about a different place to live as our apartment isn’t very big. When you consider having nurses, all the extra things he’ll need, plus the work it will take to get him in and out of our building with all his “gear,” making our apartment work is starting to look a little challenging. We trust that God will provide a new place or the grace to make the one we have work.
We continue to pray and believe for healing in Judah’s body. For his heart, his nerve damage, and his airways. Please believe with us!
Thank you all so much for your prayers, your thoughts and your words. They really make a big difference!
SO much love,
Nick & Liz