Thursday Night Update – Still Good!

Hey Everyone,

Judah is doing well. Yesterday they took his art (arterial) line out and today they took the internal jugular line out that was in his neck. That just leaves his chest drainage tube and an IV line that’s in his arm.

He is progressing very well. Each day the swelling (which is normal) goes down and he seems to be (slowly) returning to himself. Today we had him out of bed and playing on a mat on the floor. He didn’t like it very much but it’s good for him. :)

We started feeding him through his g-tube as well today. Not very much to start but we will continue to work up to full feeds over the next few days.

The only issue we’re having is he seems to be having an allergic reaction to something. He has a pretty angry rash around the areas where they’ve either cleaned with a medical solution (like Betadine) or used some sort of tape or adhesive. We all agree it’s not something from a medication. Right now he’s getting Benadryl regularly but it doesn’t seem to be getting rid of it. We will talk with the team in the morning and hopefully figure something out.

I would say we’re actually ahead of schedule in terms of when we’re going home. We know nothing is guaranteed here but we’re very grateful to God for where we are.

Prayer requests:

  • That Judah would continue to progress and be able to handle the increase in food
  • That his allergic reaction would subside
  • That the doctors would have wisdom in what to do at every step with Judah
  • That there would be no complications and we would be able to bring Judah home soon

Thank you all so much for your thoughts and prayers. They mean so much to us!

Much love,
Nick & Liz